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Community Events

Community Events

Evenings with Genetics

Join us at the Children's Museum of Houston (1500 Binz St., Houston, TX 77004) on Tuesday, April 17, 2018 from 6:30 - 8:15 PM for a seminar on -

Care and research updates for children with Primary Ciliary Dyskinesia

Speakers:

  • Laurie Robak, MD, PhD, Instructor at Baylor College of Medicine, Molecular & Human Genetics

  • Shailendra Das, DO, Assistant Professor at Baylor College of Medicine and Texas Children’s Hospital, Pulmonary Medicine Service

Admission for this event is free but registration is required. 

Texas Children's Family Fun Run

Families with children of all abilities are invited to participate in the Family Fun Run events in 2018, hosted by Texas Children’s Hospital and the Houston Marathon Foundation.

Rare Disease Day

On Saturday, Feb. 24, hundreds of patients, family members, community advocates, health care providers and more joined Texas Children’s Hospital and Baylor College of Medicine to gather at The Health Museum in Houston, raising awareness for rare diseases in observance of the upcoming Rare Disease Day. Learn More

The First International Conference on SYNGAP1-related brain disorders

This conference utilized a novel multi-disciplinary approach to bring together patient families, clinicians and researchers as equal stakeholders in order to accelerate research discovery and close the gap to clinical impact. This event was conducted to unite the international clinicians and researchers invested in SYNGAP1 to foster collaborative approaches to identify the molecular underpinnings of the disease and potential new avenues of treatment. Learn More